7am start today, and you were in okay form. First tears when Mummy told you to not to let the cat out. One of you will have to give, Mummy hates the cat even when she is okay, you love the cat even when she is not okay. I just try and navigate a quiet path down the middle of it.
It appears that the Israeli Parents of Autistic Children make their own toothpaste. A step to far for me. I am not a chemist. I tried to track down some gluten-free kids toothpaste in Eden, and they had one by Weleda there, but I just wasn't 100% sure so I got Mummy to check it. It is gluten-free so I am either going to pick some up later or get Eyal to get some Tom's of Maine from the UK while he is there. I'm not sure of the Weleda flavour. At least Tom's of Maine is strawberry flavour. Though it is with flouride. Hmmm. Is that a bad thing? There is also Nature's Gate toothpaste...can't see if that is GF or not. No clear concensus.
We are a week into the diet/biomedical intervention now. You're still standing, I've not gone mad, your mum has only mentioned calling the doctor twice and had two nervous breakdowns. You've not starved, you're not climbing the wall. Your poop has improved and I'm really happy actually how well things have gone. No overnight miracles, but huge steps with regards the nappy, the lift obsession. Language, eye-contact, patience and compliance all better. Less tantrums...magic.
Now, of course, your poop had got more solid, and dropped to being regular 6pm. Then you go and do a smelly runny poop at 9am this morning, same smell and texture as you used to have? Did you eat something wrong (either unwittingly or wittingly eaten but unwittingly wrong). This food diary is a good thing I think.
Your mum and Safta have spent lots of time today trying to get you a place in a Communications Nursery. I'm not sure if there has been no success, your mum is disheartened, but she has a meeting with the council on Thursday. Fingers crossed we can open a door somehow. I'm optimistic that we can get as far as we can. Between the two of them there should be something we can achieve.
You've been stimming lots, but it is much more good-humoured. Happy jumping rather than frustrated jumping. Lots of eye contact. You're running up to me and staring deep into my eyes as I type, you're smiling, then waving your arms and spinning round once. You tried to tickle the ant cartoon character on the screen. Something is much much better with you at the minute. Interacting with you is much easier.
We had quite a bit of fun during the day, and I was quite happy when Safta rang and said that Sharon and Limor's son Ori was having a birthday party - especially as it is Purim. We didn't have a costume for you but I figured that you might still just about sneak in last years lion one.
I took you over to Safta's at about 4.15pm, because we had to be there at 5pm. The costume fitted - just - and you actually seemed very happy to wear it. You were trying to pull the top on your head, with the lion's face and you looked at yourself very proudly in the mirror. Well, lions are proud.
We got there just before 5pm. Except no-one else did. And this is a fundamental we will have to change. We do not need to be getting you in first to alleviate their stress. You have a sensory disorder and you don't need to overload for an hour to be polite. Safta then said it was supposed to start at 5.30pm but we needed to help - except of course, we didn't. It was in a kindergarten, so we had lots of things to do, but as I am learning, this is not necessarily a good thing. You flitted back and forth, and played with everything. You ran into the garden and we did some floortime. It was quite apparent though that you weren't very interested in other children at all. We had a couple of meltdowns around the balloons, a guy was inflating one and you just wanted it, you had to have it and he was less than understanding. In the end I just took it. You also wanted the guitar and I was very sad to see Keren, Mummy's cousin, be less than sweet with you. She just took it away, rather than play it for you, and she didn't smile or anything.
As the people arrived, it became a nightmare. I think much more for me than you. You had a special plate of food, everything good I could find, but you wanted the Bamba, and you looked like you would kill for a marshmallow. I lost you a couple of times, and once I had to take a crisp from your hand and worse, a marshmallow from between your lips.
When the party moved inside, there was pitta everywhere, cheese, all you dream of. You wouldn't sit and be entertained by the guy who came to make the children laugh. You sat for maybe a few seconds, and by the time Safta went to sit with you you got up again. A couple of times, you just looked completely overloaded, and I took you out to have some quiet play while the music and the laughter was going on. We did a couple of puzzles.
You did do something that made me very happy though and it reminded me of when I saw you gatecrash a birthday party in the gymboree in Mikhmoret. The guy was playing a game or something where he had to jump, and you went over and joined in. It was lovely to see, and it was quite heartbreaking to see all the kids maybe a year older than you all joining in. It isn't often I see you with other children and it hurts to see you in some ways so far behind, and in some ways you are so so much smarter.
It got too much for me in the end, I just couldn't keep you from the pitta and my nerves were shot. I picked you up and carried you to the car. You asked where Safta was but I told you that we'd go back. We picked Mummy up, and went back for Safta, but you were absolutely shot through.
After a bath, you were in bed at 8pm.
Today's Food
Breakfast: Banana & Date Smoothie (with hidden 1/4 tsp of Calcium Citrate). I foolishly tried to break a winning formula yesterday - a major error. You raided the oven and dragged out the chocolate cake so I gave you two half portions. Adama Cornflakes with Rice Milk, which you slurped the last dregs of milk out of the bowl. Mango nectar.
Snack: Lots of strawberries. Have we found the culprit? Don't tell me it's berries. Apple, which you had only half of.
Lunch: Double helpings of white rice. Lentil patty (refused).
Dinner: Corn puffs crisps, sultanas, gummy bears, dried apricots, Good For Me! vanilla cookies. Well, it was a birthday party. Oh, and one marshmallow which never made it to your mouth and a corn crisp which touched your lips but probably was GF in reality.
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