You woke at 7.15am today, quite nice, I like this lie in mullarkey. I of course woke at stupid o'clock, but the relaxation before the morning kicks of is something I could get used to. You squealed on your bed. I leave you because I want to see if you call for me, and if not if you just trot into the room - I love that. But you squealed before I got you (Mummy slept through it) and then I got you. We lay in bed and there was something not right. You were kicking, and squealing. Just not right. Not awful, but like you were upset by something.
After breakfast, which you ate all in one sitting you came over and looked like you wanted to bite. You put the towel in your mouth and chewed on it, you opened you mouth but though you looked like you were lining up a bite I got out of the way.
I introduced the enzymes today - Kirkman's Enzym Complete DPP IV II with Isogest - I sprinkled half a capsule on your cornflakes. It just went straight down. I need to increase it to one capsule soon, but we'll ease it in. No problems though. I have no idea what they are supposed to do, I presume they assist with breaking down food. I think.
I found a very interesting article, finally, listing all the rates for salicylates, so now I now what it is in, I can make a judgment on whether something like Water Melon, which is relatively low but you will eat a kilo and therefore ingest lots is better or worse than dates, which is very high but you might only have one or two. Hmmm. Either way, it is good to have a reasonably precise list to make an informed decision on.
After the near biting incident, you got overexcited when you were on the armchair with Mummy. You grabbed hold of her lips, and really clamped them. You wouldn't let go, and when she managed to get you to let go you bit her hand. Not maliciously, just out of overexcitement. Mummy freaked out, and just couldn't cope with what you did and went into the room to cry, more from shock than pain, but it hurt too. I told her she had to address it on the spot, but she couldn't so I told you how cross I was and how bad biting is. So, after the huge argument with Mummy last night about Safta overloading your stomach and me not being able to get a drink inside you with zinc in, and me not being able to get across the importance of me controlling what goes in you so I know what has happened and what room for manoeuvre I have, you end up biting Mummy. I don't think she needs me to state the obvious for her, though after last night I was sorely tempted. She was the one who told me zinc is what straightens out the putting things in your mouth problem. It addresses putting non-food items in your mouth, biting, dummies etc. She's read a few articles on it on the Israeli forums, and here are one or two in English. So, one day you finally get some zinc in your system, then you don't and you bite me. Then you do and you're fine, then you don't get any last night and you are chomping on your Mummy. Hmmm. Looks to me like the zinc. We won't forget that one in a hurry, that's for sure.
We went to the stalactite caves in Bet Shemesh today with Nanny. You went there just before you got what I think was the meningitis that changed your life. It was lovely to take my big three year old boy back, all tall and handsome. And you had a new haircut. Nanny sat in the back as you slept and trimmed as much as she could off. I was terrified, but when you woke up, you were pretty calm as Nanny chopped the last bits off. You sat on my knee and let me open a pack of gummy bears. And you chomped away as Nanny chopped away, and off you went. And we had a fab time in the caves, you behaved really well. You seemed quite amused by it all. I was very proud. And you climbed the 154 steps up and down all on your own (bar a couple). I might just climb the stairs with you to the flat every day.
I need to pick up the glutathione cream from Morris in Netzach Israel tomorrow. It is bloody expensive, too expensive. I've never baulked at any price for you, but a cream that costs £65 a month - 405NIS per month is insane. However, it seems to actually work - improved language and focus according to this thread. Roni wrote something on it too, she says that the pharmacy made one is better than the Kirkman's one, though I did order some extra Kirkman's lotion today - I emailed Dr Berger's office with a request for some and some Phenol Assist and Phenol Assist Companion from Kirkman's too.
I found a very interesting article which talks about how much you should have of each supplement and how they all work - how they need to be taken and what a deficiency results in. I need to check the numbers you are taking, and see if we need to increase things when I talk to Roni in a few weeks.
When we were in the car coming back from the caves, I promised you a Good For Me! Chocolate Truffle, officially now called a Chocolate Surprise. After half an hour of being home you reminded me I made a promise, and then you proceeded to behave in quite the most amazingly happy and connected way I've ever seen I think. Just - well, better than regular. Perfect really, just amazing. You came back after the Chocolate Surprise had surprisingly finished, and asked me for another. The way you were made it impossible for me to say no, and then after you stopped dancing with joy (literally), you asked me for another. I explained that it was going to be the last one, "one more and that is enough". You repeated "one more" with one finger in the air. Just to be clear, I said it 10 different ways in two languages. And you didn't come and ask me for a fourth. You just sat there. And a little later you came back to me, and didn't ask for anything but a cuddle. Really remarkable.
I was trying to do some searching on the net and you came over and asked me to watch Thomas. We had a magical half an hour where you and me watch half a dozen episodes of thomas together, a couple you had never seen, and you had such a happy grin on your face. We played a game of squeeze, and there have been a lot of games going on like that lately where you do an action and I repeat it, and we change it a bit and carry on. But I think you were as happy as I could imagine a three year old being. You just kept hugging me like I was the best Daddy in the world. I know I should be glowing with pride because I think you think it, but it really is more important that you actually can think it. There was a few moments there that I just couldn't believe how lucky I was to have a boy as great as you.
The Epsom Salts are up to one cup in the bath, and you have to stay in there for 15-20 minutes, after having your skin scrubbed to open the pores. You have had a tendency of wanting out after ten minutes so we have, in true Greenspan fashion, gone with your obsessions. There are numbers and letters in the bath. Keeps you in there, and tonight after 15 minutes of me soaking you with the flannel on your head (which, unlike washing your hair where your hair gets wet), and you doing the same (except I was dressed) Nanny them came in and did another 20 minutes of fun. I can't imagine how you will miss her when she leaves tomorrow. To say more than you can ever imagine is an understatement, you have no idea how good it would be for you have her around every day. She has done amazing things with you in the last few days. I'll have to work on a way of making sure you get as much time with her as possible. After 35 minutes, and a soaked Daddy and Nanny, we pulled you out of the bath.
You didn't go down easily, I could hear noise coming from the bedroom at 10pm. I think we have to get the Nu Thera in you as quickly as possible. It can't keep going in after 4pm. Quite an excellent evening though. Possibly the happiest I have seen you be.
Little Steps: New words said: "want a tickle". Told you I was only giving you one more Chocolate Surprise and you actually accepted it. It was weird, you were hyper and as excited as you can imagine, we cut a deal "one more", you repeated it, and you never asked for another.
Poop: None. Empty after yesterday no doubt.
Sleep: Woke 7.15am. Nap 1.35pm to 2.30pm. Hard to get down, and you finally went to sleep at 10.15pm
Today's Food
Breakfast: Cornflakes and Rice Milk with Isogest (9.20am), Prigat Pear & Banana Juice with 1/4 tsp Calcium, 550mg Buffered Vitamin C and 1/2 capsule Nu Thera (9am)
Snack: Good For Me! Chocolate Cake with cashews (11am), 4 Good For Me! Vanilla Cookies
Lunch: 20 Gummy Bears (3pm), Eggy GF Bread with Isogest (3.45pm)
Snack: 3 Good For Me! Chocolate Truffles with dessicated coconut coating, Prigat Pear & Banana Juice with 250mg Buffered Vitamin C and 1/2 capsule Nu Thera (5pm), Banana
Dinner: Plate of rice, Spring Mango Nectar with 20mg capsule of Zinc(8pm)
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