Ok, I guess the fact that your nanny came today was a biggie. I was very excited, and quite relieved. I can't tell you how exhausting this is for me but not for a second would I change a thing. Except the amount of hours in a day.
But it wasn't just Nanny coming today, the supplements from Kirkman's came today too. This is a very good thing! I sent an email off to Roni and hopefully she'll tell us what to do and when. The Cod Liver Oil didn't somehow end up on the order, so we'll get that in the next round. No idea what happened, but we have a very big list of supplements to start introducing - Vitamin A, Enzymes, Vitamin C, Nu Thera, Zinc, the Fluconazole when we get a prescription, Klaire's Therbiotic #1 and CoQ10. I'm not sure what I should do first, I don't want to try one that you might react badly to on your birthday. Maybe we'll just try something like the enzymes. I've heard that the Super Nu Thera can make kids go hyper. None of us want to see something like that after 3 days - bang on your birthday.
We dropped you off at Safta's this morning at 7.30am. You woke around half an hour before and were in great form again. It's odd, I write that every day but really, once not too long ago that was a big deal. Today, you surpassed yourself. Calm getting ready, calm changing your nappy (poop before breakfast, they are soft now all the time, 1-2 a day). You were calm leaving, calm in the lift, great getting into the car. But then, after we told you (and we are making a point of making things clear) that we were leaving you with Safta, you got out the car, said bye and walked off painlessly to the building. Quite remarkable really.
We had to nip into the Child Development Unit to pick up a photocopy of your nursery questionnaire for Dalia Marco, who works for the Council and co-ordinates all of your education needs. She's really nice, and we explained over the course of a couple of hours how flexible we were, and how we preferred to be given the option of deciding whether we could, for example, take you to Eilat for Alutaf or not. We suggested finding part-time Alutaf, even. I'm very keen to get you into real professional situations. I'm ok at Floortime, but I sometimes feel I hit walls. Also, I suspect you love me and Mummy so much that you respond better to us. I'm quite optimistic, and Dalia said we should be at least able to get a teaching assistant for you with experience helping kids with autism. There was to be honest, not much prospect of getting you into Alutaf, but Mummy said that Dalia should understand that we are much more flexible - we can do a few hours a week and Dalia took that on board. There seems to be little hope of a 'honekhet', a home help, before September but we'll see. I was intially against the idea of nursery with an assistant, but it fluctuates. Part of me doesn't want to change a winning formula, but even today my thoughts on it changed. I think if it works, it might be a good thing for 3 hours a day.
I heard that you slept for another 3 hours at lunchtime, more in fact. I am a bit at a loss to understand how you can sleep for 3-4 hours at lunch, or some days not at all. I also have very little idea of what is physiologically happening to you. You seemed happy enough to see me when I pulled up at the gate to Safta's building. But I think I was initially a little disturbed that you didn't seem to acknowledge Safta when she said goodbye. There was something unusual about the lack of eye contact.
On the trip to the airport, you counted a bit, but you were ok. It's always hard to see from the front seat. Nanny arrived as we did, so we met up at the pick up point, I was very wary about coming in with all the lights, people and noise, not to mention the fountains. We got out of the car to go over to see Nanny and you basically blanked her. You were interested in the fire hydrant, the road, but Nanny...well, nothing. I could see she was a little taken aback, and I tried to explain as best I could. It's strange, you were quite non-verbal too. Nanny was great and didn't push you to respond, but just said 'Hello' and was affectionate. We came back to the flat and got everyone calm, quite difficult after last year. Then we went to pick up Mummy, who for some reason thought it might be nice to work late. At 9.20pm as we were en route, Mummy announced that she couldn't get out of the building, somehow she was locked in and couldn't get out. Finally, she found a key after ringing round half the office. Sadly, by the time we managed to drive back home, get the call from Mummy to come back (we were sitting in the car park just about to get out), and then turn that final corner, you were asleep. No bath, out for the count at 10pm.
Today's Food
Breakfast: Cornflakes and Rice Milk, Banana & Date Smoothie with calcium
Snack: banana,
Late Lunch: Two portions of Rice, Spaghetti in Tomato Sauce (refused)
Snack: Chocolate Cake (half eaten), an Apple, Mango Juice
Dinner: Two slices of GF Eggy toast (wolfed down).
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